- An estimated 1 in 133 Americans, or about 1% of the population, has celiac disease
- It is estimated that 83% of Americans who have celiac disease are undiagnosed or misdiagnosed with other conditions.
- 5-22% of celiac patients have an immediate family member (1st degree relative) who also has celiac.
- A 100% gluten-free diet is the only existing treatment for celiac today.
- 1 in 22 first-degree family members (parent, child, sibling) and 1 in 39 second-degree family members (aunt, uncle, niece, nephew, grandparent, grandchild and half-sibling) are at risk for celiac disease. Your risk may double if your brother or sister has celiac disease.
Symptoms include but are not limited to:
Bloating and gas
Itchy skin rash
Tingling or numbness
Pale mouth sores
Sean and I went to breakfast after his appointment this morning. We found a darling new restaurant called Three Little Griddles. I found it on Find Me Gluten Free. It’s a handy little app I’ve used many times, especially handy in New York.
This place is so great. It’s a family run breakfast/lunch/brunch place and it’s darling. Really small (that would be the downside because apparently it’s packed with a wait time on the weekends) but cute. Waiter was SO nice. Menu is awesome.
I ordered French Toast. I could die I was so excited to get gluten free French Toast. I haven’t made it myself nor had it since I was diagnosed. I did specify that I needed gluten free.
When it came it looked so decadently gluten filled I was nervous to eat it. But I did anyway. I ate about 1/3 of it. Then I thought of the syrup.
Holy smokes. Was it gluten free? Why didn’t I ask?? I called the waiter over and inquired about the syrup. He said he’d check but he was sure it was. A few minutes later he came back to reassure me it was gluten free and that’s when I knew.
I just had a bad feeling.
I asked if the gluten free French Toast was prepared on a different surface or the same as regular French Toast and pancakes.
He said the same surface.
How could I have been so stupid? What were my mistakes? Pretty basic rookie stuff.
- Greet the waiter and then state very clearly that “I’m Celiac” and ask if every precaution could please be made?
- Question where and how the food is prepared based on the next information.
- When I order, make sure all ingredients are gluten free.
Remember we are still in the “gluten free trendy” diet phase. So people will order their meal gluten free and promptly ask for a cinnamon roll to go with it (this place is famous for their cinnamon rolls. Often sold out very early). Though that’s simply an example, it leads to the next issue. If I’m simply ordering gluten free they don’t know how serious I really am.
I have to give an actual medical diagnosis to be taken seriously. I have to share with the world, “so, I’m Celiac. Can you take extra care on that preparation to avoid cross contamination? Thanks!”
I don’t love that. I don’t like walking around shouting my diagnosis from the rooftops. But unfortunately it really does touch every part of your life.
Anyone that chooses to go gluten free to lose weight should be embarrassed to order that incredible French Toast.
I sent it back with the waiter. Sad.day.
I’m not sure I’ve ever known in advance without a shadow of a doubt I have been glutened but here it is. I know it now. So frustrating, something so basic that could have been controlled.
They were so nice and even took it off our bill for us. Reassured me if I had TOLD them I was Celiac, they would ensure it was very safe for me. I guess that’s a good thing.
I’d go back.
It was still counted as a bad morning. My fault. I know better.