Giant Celiac blunder…

In yesterday’s post I wrote the following crazy ass statement:

Beau Jo’s for dinner because we were too lazy to scrounge up something gluten free.

As soon as I realized I wrote this I edited it. But it was up for the majority of the day.

What a ridiculously thoughtless thing to  say.

As a Celiac, you don’t get to just be too lazy to scrounge up something gluten free, so I would never do that. That makes it sound like I’m that person who says I’m on a gluten free diet and then orders french fries.

For all I know, that’s what the Ted’s Montana Grill waiter thought of me the other night.

But what I should have said was that we were too lazy to look for someplace unique and interesting because we were in Boulder. So we just chose to go to Beau Jo’s where we know we can get gluten free.

I should have been far more careful with my words. I never want to give the impression I don’t take this very seriously.

source: The New Yorker

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There’s so much controversy about Celiac.  This was a difficult weekend for Sean and I. I include Sean because meals became hard for both of us the moment they told me I was Celiac.  Now just going out to breakfast is work.  Breakfast on Saturday, I broke rules.  We went to a gluten free restaurant that was well known in Boulder. Great atmosphere, super busy and clearly very popular. I loved the whole idea of it. They were so busy, we chose the counter seats and I ended up getting right next to the kitchen. I had the best omelet ever and am determined to recreate it at home.

The potatoes I could live without.

But as I sat there looking at the kitchen I knew, there was no way that my breakfast was Celiac friendly. It was awful. My heart sunk.

I looked at Sean, he looked at the kitchen, he looked at me and he knew, too.

He would have left with me. He is great that way. But for the first time ever I just didn’t want to disrupt everyone’s life. I broke the rule. The food was “gluten free”. I said a prayer and hoped that God intervened on my behalf.

I suppose I was on the heels of the great sweet potato fries incident of Valentine’s Day 2015.  Okay, it was the night before, but you and I both know it will live on forever.  I am always trying to keep my head down, not make a fuss, don’t inconvenience people, etc. Celiac is the biggest inconvenience of them all.  It’s in.your.face.

And I always imagine I’m being secretly mocked for following a fad. I’m not a fad.  I’m trying very hard to just be healthy.

It’s possible that the entire gluten-free craze might have been avoided if celiac disease hadn’t been ignored for so long in our country. For most of the latter half of the 20thcentury, American physicians rarely researched or diagnosed celiac, unlike their European counterparts, and they considered the disease extremely rare. Even now that celiac is known to be one of the country’s most common autoimmune maladies, more than a million Americans are still walking around with undiagnosed celiac. They may suffer from unexplained symptoms; they’re at increased risk for a slew of diseases including thyroid disease, diabetes, and cancer; and the Mayo Clinic says they’re four times as likely to die prematurely as someone without celiac. Celiac afflicts 1 percent of our population, but the vast majority—as much as 83 percent—of that 1 percent are undiagnosed.

Compare this situation with that in Italy, where every child is screened for celiac disease before the age of 6. Gluten-free food is considered medicine and available in pharmacies, and restaurants offering gluten-free items are strictly regulated. Those with celiac get a food stipend as well as paid time off for medical appointments. Unsurprisingly, there’s no gluten-free craze in Italy.

source

Recognizing and respecting Celiac as an autoimmune disease and ending the mocking gluten free is something we all need to work on. Yes, there are people who are gluten free as a fad diet. Yes, they do us far more harm than good.

I do believe, however, we can safely say Celiac is practically a household word. Hey…I said practically.  So when someone says they are Celiac it should put whoever you are speaking to on the alert that this is not something you can take lightly. This person has a disease. They aren’t just trying to lose ten pounds. I think I can safely say I have that experience 75% of the time.  With success? I don’t know. I’m risking it each time I go out. I’m just livin’ on the edge of the sweet potato fries.

But someday if we all keep pushin’ our dreams…we’ll be livin’ like the Italians.  

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OH my gosh YES to this! 19 Things Only People With Celiac will Understand

I usually get like 4 or 5 of these…but every single one of these except the last one. I’m it in my little community.

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Run on…

5 Replies to “Giant Celiac blunder…”

  1. You worry too much. I completely understood what you were saying . with the info you have given in your blog I don’t think anyone believes that you take this lightly. I have done that to myself.I get itchy and migraines from nutrasweet. Every once in a while I order a soda. I’m fat so they always bring me a diet. If I’m not paying attention I swig it down and then I’m so screwed. *sigh* it’s so frustrating.

    1. I’m sorry, have you met me? LOL. Yep. I worry too much. But I also worry that someone who is freshly diagnosed or new to the blog pops over to read and gets THAT. That’s just not cool. They have to see the real me from every blog post.

      Yep…the NutraSweet joy, right? Good times. I’ve seen you after you eat MSG. It’s CRAZY.

  2. Ugh. 🙁 It seems like such a blessing and a curse that more and more people are interested in gluten free. On the one hand, more gluten free products are easily available. On the other – it’s so much harder to tell if they’re ACTUALLY gluten free. I’m pretty sure I saw something recently that said “Naturally gluten free!” on it… along with “manufactured in a plant that also processes wheat.” =/ I don’t have celiac, but it makes me angry for people who do 🙁

    That’s a really interesting blurb you posted, too.

    1. I couldn’t believe that little snippet of info I grabbed. Fascinating!

      I can’t tell you how many times I’ve found food or restaurants that proclaim proudly “gluten free!” and then in tiny letters the whole “manufactured in a plant that also processes wheat”. Well hello. Thank you for making everyone that is on a DIET happy.

      1. That’s so ridiculous 🙁 and I have to admit that I sometimes feel like a part of the problem. I don’t need to be gluten free, but wheat has a very high FODMAP content and irritates my stomach problem. I try to stay away from wheat, but often that leads to having to order / buy the “gluten free” option… I don’t need gluten free per se, and it makes me feel like I’m hurting people who actually do!

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